Aspergian Pride
Apr 09
The AASPIRE Gateway Project enables the academic community and the autistic community to work together on research projects considered relevant by the autistic community. In accordance with the principles of Community Based Participatory Research, researchers and community members serve as equal partners throughout the research process. To learn more about a new study on Internet use, community and well-being, and [...] [...more]
Posted: under Research.
The AASPIRE Gateway Project enables the academic community and the autistic community to work together on research projects considered relevant by the autistic community. In accordance with the principles of Community Based Participatory Research, researchers and community members serve as equal partners throughout the research process. To learn more about a new study on Internet use, community and well-being, and how you can participate in it, please read the announcement reposted below.
Be Included in Autism Research
The Academic Autistic Spectrum Partnership in Research and Education (AASPIRE) and the Gernsbacher Lab believe in research WITH adults on the autistic spectrum, not just ABOUT them. Together, we have created the Gateway Project, which is an online gateway to research that
* encourages the inclusion of adults on the autistic spectrum in matters that affect them;
* includes adults on the autistic spectrum as equal partners in research about the autistic spectrum;
* answers research questions that are considered relevant by the autistic community;
* uses research findings to effect positive change for people on the autistic spectrum.
The Gateway Project needs your help, whether or not you are on the autistic spectrum.
Gateway studies address topics such as healthcare experiences and problem-solving. A new AASPIRE Gateway study focuses on Internet use and well-being, including feelings about connecting with other people via the Internet and social support. AASPIRE expects to use the information learned to understand how involvement in online communities may benefit individuals.
To participate in the AASPIRE Internet Use, Community and Well-Being Study and any of the Gateway Project studies:
1. Register online for a Gateway account starting at http://www.thegatewayproject.org
2. Take the online Gateway Survey. The survey takes about 20-40 minutes to complete.
3. Wait for email messages about further studies. You may be eligible for some studies and not for others. You will only receive email messages for studies for which you are eligible.
4. If you are eligible for the Internet Use, Community and Well-Being Study and decide to participate, it will take about 40 minutes to complete.
5. After finishing each survey, you can enter a drawing for an Amazon.com gift certificate.
Completing the survey entitles you to a 1 in 15 chance to win a $25 Amazon.com gift certificate.
If you would like to learn more about the AASPIRE Internet Use, Community, & Well-Being Study or Gateway Project:
Go to the AASPIRE Well-Being Study page at http://aaspire.org/wellbeing
Send an email to Dora Raymaker at dora@aaspire.org
Make a telephone call to Dr. Christina Nicolaidis at 1-503-494-9602
OHSU IRB # 5568
Principal Investigators: Christina Nicolaidis, MD, MPH, Oregon Health & Science University
Katherine McDonald, PhD, Portland State University
Dora Raymaker, MS, Autistic Self-Advocacy Network
Nov 08
The Gateway Project, mentioned in a previous post on this site, is seeking to recruit participants to help with its research. It conducts research on topics such as health care, well-being, and problem solving that may benefit the lives of people on the autistic spectrum. The Gateway Project is committed to including autistic adults as equal partners in its [...] [...more]
Posted: under Research.
The Gateway Project, mentioned in a previous post on this site, is seeking to recruit participants to help with its research. It conducts research on topics such as health care, well-being, and problem solving that may benefit the lives of people on the autistic spectrum. The Gateway Project is committed to including autistic adults as equal partners in its research team to investigate research questions that are relevant to the autistic community.
To read a flyer with more information about the Gateway Project, click here.
Sep 13
Steven Kapp, a Ph.D. student at the UCLA Graduate School of Education & Information Studies who is himself on the autism spectrum, is seeking participants for an online research survey that examines the relationship between the autism spectrum and Internet use, identity (including language use and neurodiversity), and visual perception. Scores are completely anonymous, and the [...] [...more]
Posted: under Research.
Steven Kapp, a Ph.D. student at the UCLA Graduate School of Education & Information Studies who is himself on the autism spectrum, is seeking participants for an online research survey that examines the relationship between the autism spectrum and Internet use, identity (including language use and neurodiversity), and visual perception. Scores are completely anonymous, and the survey is for any child or adult of at least 7 years in age who is diagnosed on, and/OR who self-identifies as on, the autism spectrum.
The survey can be found at http://www.surveymonkey.com/s/NNWDRT9 and can be expected to take at least 15 or 20 minutes.
Nov 05
Doctoral candidate C.S. Wyatt, who is himself autistic, is conducting research for his dissertation at the University of Minnesota on the use of online courses by autistic students. This research may help to persuade university administrators that providing accommodations to improve educational access for the autistic population makes both ethical and financial sense. If you have a [...] [...more]
Posted: under Research.
Doctoral candidate C.S. Wyatt, who is himself autistic, is conducting research for his dissertation at the University of Minnesota on the use of online courses by autistic students. This research may help to persuade university administrators that providing accommodations to improve educational access for the autistic population makes both ethical and financial sense. If you have a moment, please consider completing the survey described below.
Survey to Assess Needs for Improved Course Designs
As colleges and universities offer more courses online, it is important that we consider how students with autism spectrum disorders approach online communities, especially online classes. My experiences as a diagnosed high-functioning autistic student and instructor have led me to question how online courses could be designed to better serve students with autism spectrum disorders. I am conducting a survey, seeking to determine if there are characteristics of some online communities ASD individuals prefer. I am also interested in learning what qualities of online communities might be disliked by individuals with ASDs.
If you are an individual with an officially diagnosed autism spectrum disorder interested in offering opinions about online communities, I hope you will consider completing this brief online survey. You do not have to be a student. However, you should have some experiences with online communities so you can explain what design qualities are or are not appealing in various communities.
This will be an anonymous survey. Only your answers to interview questions will be saved and referenced during the study.
If you are interested in participating in these interviews, please visit the following survey link:
https://www.surveymonkey.com/s.aspx?sm=6hUN2HISyDpNYnlwPpLkxQ_3d_3d
Thank you,
Christopher Scott Wyatt
Doctoral Candidate
Rhetoric; Scientific and Technical Communication
Digital Literacy and Pedagogy
Dept. of Writing Studies
University of Minnesota
wyatt050@umn.edu
This study is referenced by University of Minnesota IRB Code Number 0909P72516.
Oct 19
Elesia Ashkenazy, a community partner of the Academic Autistic Spectrum Partnership in Research and Education (AASPIRE) and chair of the Portland, Oregon chapter of the Autistic Self Advocacy Network (ASAN), is familiar to many in the autistic community because of her leadership of the ASAN-Portland protest at an Autism Speaks walk, after which she was interviewed on the TV [...] [...more]
Posted: under Research.
Elesia Ashkenazy, a community partner of the Academic Autistic Spectrum Partnership in Research and Education (AASPIRE) and chair of the Portland, Oregon chapter of the Autistic Self Advocacy Network (ASAN), is familiar to many in the autistic community because of her leadership of the ASAN-Portland protest at an Autism Speaks walk, after which she was interviewed on the TV news. She is distributing the following announcement about AASPIRE’s Gateway Project, which is currently seeking participants for community-based research studies:
Be Included in Autism Research
The Academic Autistic Spectrum Partnership in Research and Education (AASPIRE) believes in research WITH autistic adults, not just ABOUT autistic adults.
The AASPIRE Gateway Project is an online gateway to research that fulfills AASPIRE’s mission to
encourage the inclusion of autistic adults in matters which directly affect them;
include autistic adults as equal partners in research about autism;
answer research questions that are considered relevant by the autistic community;
use research findings to effect positive change for people on the autistic spectrum.
The AASPIRE Gateway Project needs your help, whether or not you are on the autistic spectrum.
If you are at least 18 years old and have access to the Internet, you can participate in a series of continuing online research studies that help AASPIRE achieve its mission. Upcoming studies address topics such as healthcare, Internet use, and problem-solving.
To participate in the AASPIRE Gateway Project:
1. Register online for an AASPIRE Gateway account starting at www.aaspire.org/gateway.
2. Take the online AASPIRE Gateway Survey. The survey takes about 20 minutes to complete.
3. You will be notified by email when new studies for which you are eligible become available.
Completing the survey entitles you to a 1 in 25 chance to win a $25 Amazon gift certificate.
If you would like to learn more about AASPIRE or the Gateway Project, you can
Go to the Gateway home page at www.aaspire.org/gateway.
Send an email to Dora Raymaker at dora@aaspireproject.org.
Make a telephone call to Dr. Christina Nicolaidis at 1-503-494-9602.
OHSU IRB # 3762; UW IRB# SE-2008-0749
Principal Investigators:
Christina Nicolaidis, MD, MPH, Oregon Health & Science University
Morton Ann Gernsbacher, PhD, University of Wisconsin-Madison
Katherine McDonald, PhD, Portland State University
Dora Raymaker, Autistic Self-Advocacy Network
Please pass this information along to your friends!
Jul 14
Sebastian Dern, who is on the community advisory board of the Academic Autistic Spectrum Partnership in Research and Education (AASPIRE) Gateway Project, has provided information to Aspergian Pride about participation in these studies. The AASPIRE Gateway Project is a community based participatory research project that studies aspects of autism relevant to autistic adults from the [...] [...more]
Posted: under Research.
Sebastian Dern, who is on the community advisory board of the Academic Autistic Spectrum Partnership in Research and Education (AASPIRE) Gateway Project, has provided information to Aspergian Pride about participation in these studies. The AASPIRE Gateway Project is a community based participatory research project that studies aspects of autism relevant to autistic adults from the perspective of autistic adults, seeking to positively influence services, awareness and research and its impact in general for autistic people.
Announcement: Participate in the AASPIRE Gateway Project
You are invited to participate in a continuing online research project
called the AASPIRE Gateway Project. This online research project is
conducted by the Academic Autistic Spectrum Partnership in Research and
Education (AASPIRE, http://aaspireproject.org) in collaboration with
Oregon Health & Science University, the University of Wisconsin-Madison,
Portland State University, and the Autistic Self-Advocacy Network.
The AASPIRE Gateway Project is recruiting participants with and without
disabilities, and participants on the autism spectrum, for a series of
continuing online studies on topics such as health care, Internet use,
online sense of community, identity, problem solving, and perspective
taking. The goals of the online AASPIRE Gateway Project are
(1) to collect the Gateway Survey data;
(2) to use the Gateway Survey data to invite eligible participants to
AASPIRE’s continuing online research studies; and
(3) to use the Gateway Survey data in AASPIRE’s continuing online
research studies.
You may participate in the AASPIRE Gateway Project and contribute to
continuing AASPIRE research studies if you are at least 18 years old,
and you have access to the Internet.
The first step in joining the AASPIRE Gateway Project is completing the
online AASPIRE Gateway Survey. The AASPIRE Gateway Survey asks about (a)
personal information, such as age, gender, disability, education, and
employment status, (b) information about which hand you prefer to use
when doing activities such as writing with a pen or pencil, and (c)
information about your personal preferences regarding interests, habits,
and social interactions. Completing the AASPIRE Gateway Survey will take
approximately 20-40 minutes. In return, you may choose to be entered
into a drawing for a 1 in 25 chance to win a $25 gift certificate to
Amazon.com or to receive 1 extra credit point in your introductory
psychology class if you are a student at the University of
Wisconsin-Madison.
Adults who identify as having a disability and adults who identify as
being on the autistic spectrum are especially encouraged to participate
in the AASPIRE Gateway Project.
If you’re interested in participating in the AASPIRE Gateway Project, or
would like to learn more about AASPIRE or the study, here are three ways
you can get started:
1) Go to the study’s website at www.aaspire.org/gateway.
2) Send an email to info@aaspireproject.org.
3) Make a telephone call to Christina Nicolaidis, MD, MPH, at 001- (503)
494-9602 or Morton Ann Gernsbacher, PhD, at 001 – (608) 262-6989.
OHSU IRB # 3762; UW IRB# SE-2008-0749
Principal Investigators: Christina Nicolaidis, MD, MPH, Oregon Health &
Science University
Morton Ann Gernsbacher, PhD, University of Wisconsin-Madison
Katherine McDonald, PhD, Portland State University
Dora Raymaker, Autistic Self-Advocacy Network